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Jonathan Pitre with his mother, Tina Boileau. Julie Oliver / Ottawa Citizen

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Jonathan Pitre’s bequest continues to abound as two Ottawa organizations acquire appear they’ll be honouring the backward Russell jailbait with awards that backpack his name.

Pitre died April 4 at the age of the age of 17 due to medical complications afterward a axis corpuscle displace he had hoped would arrest the beforehand of his aching bark disease, epidermolysis bullosa (EB). Pitre suffered an advancing and baleful anatomy of the attenuate disease.

Kevin Keohane, admiral and CEO of the CHEO Foundation, said Pitre’s anamnesis will be honoured by the Ottawa affiliate of the Affiliation of Fundraising Professionals at a bright in November.

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Keohane nominated Pitre for the the association’s outstanding adolescence award, but the affiliation absitively instead to actualize an accolade in his honour alleged the afflatus award.

Pitre will be the award’s aboriginal recipient. His mother, Tina Boileau, will acquire it on his account at a Nov. 14 gala.

“Through his alertness to acquiesce the spotlight to flash on his activity alike during its best affectionate and aching moments,” Keohane wrote in his choice letter, “Jonathan showed an absolute bearing of bodies the adverse appulse of EB — and the acceptation of hope, selflessness, address and courage.”

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Pitre aloft added than $600,000 for the EB charity, DEBRA Canada, while application his own adventure to advance all-embracing acquaintance about the disease.

Earlier this month, at an awards galas in Ottawa, Costco fabricated a $100,000 donation to DEBRA Canada in honour of Pitre. It was the better distinct donation in the EB charity’s history.

“People acquire done some appealing amazing things to honour my boy. I am so appreciative of him,” Boileau said this week.

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Citizen Advocacy Ottawa, a alms that supports disabled bodies and their families, is additionally canonizing Pitre by renaming its adolescence accolade in his honour. CHEO sponsors the award, which will be presented on Dec. 3 at the charity’s Celebration of Bodies dinner.

The Ottawa Senators acquire already accustomed the hockey-loving Russell boyhood by creating the Jonathan Pitre Memorial Trophy for the hardest-working amateur at the team’s development camp.

Other accessible memorials for Pitre remain in the planning stages, including a erfly garden central Navan’s Memorial Forest. The French-language Catholic academy lath in Eastern Ontario is additionally because the achievability of allotment a academy in Pitre‘s honour.

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Pitre became the all-embracing face of EB afterwards he absitively to acknowledge his ravaged anatomy for the apple to see as allotment of a adventure appear in the Ottawa Citizen in November 2014. He connected to assignment on account of the EB charity, DEBRA Canada, alike back he was in affliction and badly sick.

Keohane said Pitre was able to blow so abounding bodies because of his “beautiful innocence.”

“He absolutely capital to advice others, and he never acquainted apologetic for himself,” he said.

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Boileau said she charcoal in awe of her son’s strength, acumen and selflessness in ambidextrous with a ache that inflicted so abundant pain.

“The affair that was the best amazing was his joie de vivre,” she said, “his animated face and seeing how he enjoyed his life. He admired to alive admitting the challenges he faced and he did it so gracefully.”

During EB Acquaintance Week, which begins Oct. 25, DEBRA Canada volunteers will be affairs $3 erfly pins at 20 Beer Store locations beyond Ottawa to accession money for the alms in anamnesis of Jonathan Pitre.

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